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|Spinal Cord Injury Statistics
Updated June, 2009
Spinal Cord Injury Facts &
Figures at a Glance 2009
This is a publication of the National Spinal Cord Injury Statistical Center, Birmingham,
Incidence: It is estimated that the
annual incidence of spinal cord injury (SCI), not including those who die at the scene of
the accident, is approximately 40 cases per million population in the U. S. or
approximately 12,000 new cases each year. Since there have not been any overall incidence
studies of SCI in the U.S. since the 1970's it is not known if incidence has changed in
Prevalence: The number of people in
the United States who are alive in 2008 who have SCI has been estimated to be
approximately 259,000 persons, with a range of 229,000 to 306,000 persons. Note: Incidence
and prevalence statistics are estimates obtained from several studies. These statistics
are not derived from the National SCI Database.
The National Spinal Cord Injury Database has
been in existence since 1973 and captures data from an estimated 13% of new SCI cases in
the U.S. Since its inception, 26 federally funded Model SCI Care Systems have contributed
data to the National SCI Database. As of November 2008 the database contained information
on 26,189 persons who sustained traumatic spinal cord injuries. All the remaining
statistics on this sheet are derived from this database or from collaborative studies
conducted by the Model Systems. Detailed discussions of all topics on this sheet may be
found in special issues of the journalArchives of Physical Medicine and Rehabilitation published in November 1999 and November 2004.
Age at injury: SCI primarily
affects young adults. From 1973 to 1979, the average age at injury was 28.7 years, and
most injuries occurred between the ages of 16 and 30. However, as the median age of the
general population of the United States has increased by approximately 8 years since the
mid-1970s, the average age at injury has also steadily increased over time. Since
2005, the average age at injury is 40.2 years. Other possible reasons for the observed
trend toward older age at injury might include changes in either referral patterns to
model systems, the locations of model systems, survival rates of older persons at the
scene of the accident, or age-specific incidence rates.
Gender: Currently, 80.9% of spinal
cord injuries reported to the national database have occurred among males. Over the
history of the database, there has been a slight trend toward a decreasing percentage of
males. Prior to 1980, 81.8% of new spinal cord injuries occurred among males.
Race/Ethnicity: A significant trend
over time has been observed in the racial/ethnic distribution of persons in the database.
Among persons injured between 1973 and 1979, 76.8% were Caucasian, 14.2% were African
American, and 0.9% were Asian. However, among those injured since 2005, 66.1% are
Caucasian, 27.1% are African American, and 2.0% are Asian. Hispanic increased fron 6.0% to
8.1% over this same time period. This trend is due in part to trends in the United States
general population and also possibly explained by the changing locations of model systems,
referral patterns to model systems, or race-specific incidence rates.
Etiology: Since 2005, motor vehicle
crashes account for 42.1% of reported SCI cases. The next most common cause of SCI is
falls, followed by acts of violence (primarily gunshot wounds), and recreational sporting
activities. The proportion of injuries that are due to sports has decreased over time
while the proportion of injuries due to falls has increased. Violence caused 13.3% of
spinal cord injuries prior to 1980, and peaked between 1990 and 1999 at 24.8% before
declining to only 15.1% since 2005.
Neurologic level and extent of
lesion: Persons with tetraplegia have
sustained injuries to one of the eight cervical segments of the spinal cord; those with
paraplegia have lesions in the thoracic, lumbar, or sacral regions of the spinal cord. The
most frequent neurologic category at discharge of persons reported to the database is
incomplete tetraplegia (30.1%), followed by complete paraplegia (25.6%), complete
tetraplegia (20.4%), and incomplete paraplegia (18.5%). Less than 1% of persons
experienced complete neurologic recovery by hospital discharge. Over the last 15 years,
the percentage of persons with incomplete tetraplegia has increased slightly while
complete paraplegia has decreased slightly.
Occupational status: More than half
(57.5%) of those persons with SCI admitted to a Model System reported being employed at
the time of their injury. At post injury year 1, 11.5% of persons with SCI are employed.
By post injury year 20, 35.4% are employed and a similar level of employment is observed
through post injury year 30.
Residence: Today 87.8% of all
persons with SCI who are discharged alive from the system are sent to a private,
noninstitutional residence (in most cases their homes before injury.) Only 5.7% are
discharged to nursing homes. The remaining are discharged to hospitals, group living
situations or other destinations.
Marital status: Considering the
youthful age of most persons with SCI, it is not surprising that most (52.3%) are single
when injured. Among those who were married at the time of injury, as well as those who
marry after injury, the likelihood of their marriage remaining intact is slightly lower
when compared to the general population. The likelihood of getting married after injury is
Length of stay: Overall, median
days hospitalized in the acute care unit for those who enter a Model System immediately
following injury has declined from 24 days in 1973 through 1979 to 12 days in 2005 through
2008. Similar downward trends are noted for days in the rehab unit (from 98 to 37 days).
Overall, median days hospitalized (during acute care and rehab) were greater for persons
with neurologically complete injuries.
Lifetime costs: The average yearly
health care and living expenses and the estimated lifetime costs that are directly
attributable to SCI vary greatly according to severity of injury.
These figures do not include any
indirect costs such as losses in wages, fringe benefits and productivity which average
$64,443 per year in December 2008 dollars, but vary substantially based on education,
severity of injury and pre-injury employment history.
Life expectancy is the average
remaining years of life for an individual. Life expectancies for persons with SCI continue
to increase, but are still somewhat below life expectancies for those with no spinal cord
injury. Mortality rates are significantly higher during the first year after injury than
during subsequent years, particularly for severely injured persons.
Cause of death: In years past, the leading cause of death among
persons with SCI was renal failure. Today, however, significant advances in urologic
management have resulted in dramatic shifts in the leading causes of death. Persons
enrolled in the National SCI Database since its inception in 1973 have now been followed
for 35 years after injury. During that time, the causes of death that appear to have the
greatest impact on reduced life expectancy for this population are pneumonia, pulmonary
emboli and septicemia.
The Spinal Cord Injury Model System
Program was established in the early 1970s. Presently there are 14 systems and 3
subcontractors sponsored by the National Insitute on Disability and Rehabilitation
Research, Office of Special Education and Rehabilitative Services, U.S. Department of
Source: National Spinal Cord Injury
Statistical Center (NSCISC)
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